Emily’s Weekend

Hello! Sorry it has been a while since we posted. Emily is doing well. She had a really good day on Saturday and was awake for most of the time that we were there. On Sunday she had a bad day though and was desating a lot. She looked pale to me and they ran … [Read more…]

Blue Jean baby’s milk

Emily has had some good days recently. She had her milk scan on Wednesday which I was there for. I was actually able to be there for the whole test. The test was simple enough, lay Emily on an imaging table and feed her a bottle with radioactive (slightly) material in it with her milk. … [Read more…]

Emily and the bunny with a heart

As you can see Emily had a new outfit on last night. This one her paternal grandmother got her. Isn’t she too cute! The one with me holding her is taken right after she fed off of me. I don’t know why but her eyes just bugged out after that. Emily had a good day … [Read more…]

Don’t we all wish we could lose our water weight?

Hello, Emily had a good weekend. She handled both the bottle and breastfeeding well. However on Saturday night we noticed that she gained about 3 oz overnight! This is not normal. Also her output had went down. Needless to say she had fluid build up on her lungs and this made her oxygen requirements go … [Read more…]

Emily’s New Dress

Hello, Well Emily is able to eat from a bottle or breast. She is completely in control of the situation because of her heart. However there are a few ground rules. She can only have breast or bottle and if she chooses breast she can only be there for 20 minutes tops. As you can … [Read more…]