We didn’t get to post Emily’s Christmas pictures because of everything that happened. The one with her in her red dress was taken while opening her presents. She is looking at a Little People Nativity set Dad’s great aunt (who is a Sister of Mercy) got for her. She was very alert and looking at … [Read more…]
Emily died today at Children’s Hospital of Philadelphia. She was only 5 months, 5 days old. She was very strong, very brave, very smart, and everybody loved her. Her Mommy and Daddy love her very, very much. Tony
Jennifer called me this morning and sadly, Emily isn’t doing well.Jen asked me to post a note to tell everyone they think our sweet little girl may not be with us too much longer.Emily is stating in the 70s. The Dr’s say her PDA was opening again and she has something called Cor pulmonle, which … [Read more…]
Hello, Well Emily is now at the Children’s Hospital. She was moved to the conventional vent yesterday so they could do a EEG (to monitor her brain waves and check for seizure activity). She did well enough for it to get her transported to the other hospital, where she was put back on the oscillator. … [Read more…]
Edited to add:Emily was put on the vent about noon on Sunday. She had been desating into the low 80’s and we feared that it could be damaging her more. Initally they just had her on the conventional vent with her “NO” gas or Nitric Oxcide. We thought that this would stablize her and we … [Read more…]