Well I heard back from the second opinion hospital. They said that where I am at is considered a very good place for lymphoma. I knew that but it was nice to hear all the same.
They also said that they will not see people being actively treated at another facility. I can understand that but I didn’t want to change what I am currently being treated with… it is just the “next step” that I have questions with.
The person I spoke with today was a nurse but she seemed a bit confused by my current oncologists thinking right now. I told her that my oncologist is going to make the decision about radiation at this next appointment based on my CT scan a week from Friday. But that I was also going to get 2 more rounds of chemo regardless of what this CT scan shows. This last bit was a bit confusing to her. I said to her that I “didn’t know and thought maybe the last 2 rounds don’t really count, and that it was just to make sure the cancer was REALLY gone.” She said that they do count.
So now I am starting to wonder what is happening with me. If those rounds count, why would my doctor even mention radiation to me at cycle 3 of 6 (based on the scan after round 2)? If I was making a cake and took it out after only half the cooking time, I should be considered a fool if I got mad because it wasn’t cooked all the way through.
One thing I am realizing though is I don’t see how any “normal” person gets through this. Tony is a medical research scientist with his PhD in Biochemistry. He clearly knows how to research and more importantly understands why certain things I take work. How in the world is the rest of us (I only have a degree in Early Childhood Education) suppose to understand this? Or do people not understand this and accept things? I don’t get it.
I am suppose to hear from the “plan B” doctor in the next 24 hours. I will give them longer then that though.
Jennifer