Goodbye

Emily died today at Children’s Hospital of Philadelphia.

She was only 5 months, 5 days old.

She was very strong, very brave, very smart, and everybody loved her.

Her Mommy and Daddy love her very, very much.

Tony

72 Comments

  1. Anonymous

    I am so sorry…I have been praying for your whole family since hearing about you from Hannah’s Prayer. I am so sorry you lost your little angel!

  2. Anonymous

    I know you guys do not know me, but I feel as though I know Emily, I have been following your journey for quite some time now. I am completely devastated tonight for your family and beautiful little Emily. I have no words that will help you deal with the impact of these events, but I want you to know how truly sorry I am for all of you, my heart is just hurting.

    Shay-Arizona

  4. Anonymous

    Jennifer and Tony… my heart just broke reading this post, but that is so insignificant given the magnitude of your pain. We are all grieving with you and for you. Little Miss Emily was a gift from God who has been returned to Him, but will always be remembered along with her brothers, for her courage and your grace and love. Thank you for sharing your story with all of us, and I wish with all my heart it had a different ending. May God grant you comfort.

  5. Anonymous

    I too have been following your journey from Hannah’s Prayer. Your family has been in our prayers for sometime now and I was just heart broken to sign on and see the worst. I will cont. to pray for your healing and I am very sorry for your lost.
    Jere’-Alaska

  6. Dear Jennifer and Tony,

    I cannot begin to express how heartbroken I am for you guys. I am writing this with tears flowing down and I have been crying since last night. Emily was such a brave and strong little girl, I am sure she has a very special place in heaven. I cannot even imagine the grief you have. Please just know that I will continue to lift you guys up to Jesus when you are unable to. May He comfort you and give you strength. May He surround you with His overflowing love and grace.

    Weeping and grieving with you,

    Sonia

  7. Anonymous

    Hi there, I have only just heard about your amazing journey with your angels, i lost my daughter in january last year, in fact today is her birthday, we lost her at 2 weeks. i just wanted to send some gentle hugs to you and your family at what must be a heartbreaking end to such dreams of a future. I have fallen apart with losing my angel so cannot imagine what you are all going through. Anyway, my thoughts are with you, i hope you can be strong for each other and support each other as best you can.
    lots of love and hope for a better year. toni xxx
    jazminswish.org.uk

  8. Anonymous

    I am a relative newcomer to your story, but was sucked in rather quickly by Emily’s big eyes and sweet face. She looked to have such a personality. Now she is playing with her brothers and the other angels and giggling and dancing. Prayers for your family tonight during this difficult time.

  9. Bless you all in your time of loss. Know that your little angel will always be near you, watching over those who loved her in her short life, and in death.
    May you find comfort in her memory.

    Kelley
    mother to Logan & Jesse 31w 3d preemies

  10. Anonymous

    I am so sorry to hear about Emily. As the parent of a former 31 weeker I know the ups and downs of life with a fragile newborn, and I am so sorry that you journey ended up this way. Please know that Emily has touched the lives of many people. Her life had a bigger purpose than we may ever know, and may it bring you peace to know that she is no longer suffering-but is in the arms of Jesus safe and whole again. My thoughts will be with your family in the difficult days and weeks ahead. Reading this blog truely shows that you are loving and caring parents who fought hard for their daughter and never gave up-that is truely amazing and shows strength beyond words-may you continue to find that strength!!

  11. Anonymous

    I am so sorry for your loss. I lost one of my preemie twins when he was 5 months old. I will pray that you will find comfort in each other, and that you will cherish each memory you had with your precious Emily. May God give you peace.

  14. Anonymous

    I’m so sorry that your precious daughter has died. I am praying for your mommy and daddy hearts.

  15. Jen and Tony,
    All I want to do is something to help you and your family. How can I help? You name it, and I will do it. I have known Jen since I started charting on WebMd in 2005. Whatever you need – I will send it. Call me whenever you want. I have prayed for Emily and her brothers every day since they were born. I am in total and complete shock. I am so ashamed that I considered this a very bad day for me. Nothing in my bad day at work could possibly touch this devastating life-altering event. Time will forever be changed in your hearts and minds. I am incredibly sorry for your loss and want you to know that you will continue to be in my prayers for many years to come. God bless you, and may He somehow, in some way, grant you peace. I love you, Jen!

    Your sister in Christ,
    Kristina “TFNT”
    [email protected]

  16. Anonymous

    Jennifer and Tony,
    I want to express my deepest sympathy to your family. I found out about your precious children from Sonia. I cannot begin to imagine the depth of your pain and sorrow.
    Your children have forever touched many hearts and hold a very special place in my heart. My love and prayers continue for your family.

    Kim
    Texas

  18. Melissa

    Jennifer and Tony,
    You do not know me but please know that my thoughts and prayers are with you and your family.I know how hard it is to loose a child, I lost my son Ethan at 22wks and 4 days along. He lived 50 minutes. Our children are now back with their heavenly father and having fun.

  19. Anonymous

    Praying for your family in this time. May God lift you up and give you strength. Emily will be missed.

  20. Anonymous

    Dear Jennifer and Tony, Little Miss Emily touched more lives in her too-short stay than you will probably ever know! I am so sorry. Today is my mom’s birthday and the first thing she said when I called her this morning is please pray for Emily. We will continue to uphold you in prayer. Love, Courtney

  21. Anonymous

    I am so sorry for the loss of your precious baby girl. She was and continues to be a beautiful angel. May God’s love and peace be with you and your family during this time and always.

  22. Anonymous

    I am so sorry for the loss of your precious baby girl. She was and continues to be a beautiful angel. May God’s love and peace be with you and your family during this time and always.

  23. Anonymous

    I am so sorry for your loss. What a sweet little girl. I pray God’s comfort and peace beyond understanding right now and in the days ahead. May He give you strength during this time. I am so sorry……

  24. I am so deeply sorry for your loss. My heart just broke when I saw your little angel had passed. Many prayers go out to little Miss Emily and her parents. May you find much healing and peace in the days to come.

  25. Kerry (TwintoTwin)

    I am so very sorry to hear about the loss of your baby angel, Emily. My prayers are with your entire family.

  26. Tony and Jennifer,

    When I read your post tonight, I burst out weeping. Emily was such a strong, such a brave, and such a beautiful little girl. She taught us a lot in her short life and we were glad to have gotten to know her and will miss her deeply. She was not out of our thoughts for an instant this past week.

    May your family find some solace and peace in this time of sorrow and please know that we will keep thinking about you and praying for you. Your whole family touched ours in ways that I cannot begin to articulate.

    Your friends,

    Abby, Sharon, and Hallie

  28. Hello. You don’t know me, as I was linked here through a woman known as “irangel” on LiveJournal. I just wanted to tell you how sorry I am for your loss, and I believe that this means that God needed one more angel in Heaven. I know this is a very rough time for you and your family. I wish you all the very best for now and in the future.

    ~Chelsea — Toledo, OH

  30. Rowena

    Dear Tony and Jennifer,

    Today is my birthday and I will forever remember it as the day that your precious Miss Emily went to be with Jesus and her brothers. I don’t know if you can begin to understand the blessing that your beautiful little girl has been to those of us who have followed her life that last few months. She has been such an inspiration and such a wonderful gift to us. Thank you for sharing her so openly with us who are strangers but also part of your loving family. I pray that God surrounds you with His love and a peace that only He can give in a time of such incredible grief. I also pray for your parents, as I am a grandmother and know how precious a grandchild is. Take care and know that you are loved by so many. God bless you and keep you, Rowena

  31. I pray for comfort for your family. I am so very sorry for the loss of your sweet Emily. My heart is breaking for you. She’s been in my prayers and I will continue to pray for your family.

  33. Jennifer and Tony … my heart is breaking for you and your family. Emily was such beautiful and precious little girl and such a blessing. I praise the Lord for the time that you were able to spend with her and I weep that that time has now ended. I pray that the Lord will fill your hearts with His peace during this time of mourning.

  34. Anonymous

    i am so sorry for the loss of emily she amazing baby and very beautiful but i no how you feeel i lost a premiture baby called daniel he was 6 months old when he died my heart goes out to you at this difficult time
    from julie paul hollie and zoe

  36. Anonymous

    Like many others, I don’t know you but was informed of your sweet babies by a group called “Friends of Allie”.

    I am so sorry for the losses you have endured these past few months. I will keep you in my prayers now and always.
    -Jill
    Chino, CA

  37. You don’t know me, but, I read many of the the sites of cambridge families. My heart is so sad for you at the this time as “Miss Emily” goes to heaven and is in the arms of God. She is free and is reunited with her brothers and hopefully there is some comfort in that. Just know people are praying for you.

  38. I am so sorry for your loss of “Miss Emily.” Like so many who have posted I do not know you personally but have read your post and prayed for you during your struggles. I will continue to pray for you during this time. May God guide you. Love.

  39. Anonymous

    Jennifer and Tony,
    I am so sorry to hear about Emily, If you need anything, remember I am just a phone call away.
    Wendi- NJ

  40. Anonymous

    Dear Jennifer and Tony,

    I found your blog through Sonia and my heart has been captured by your beautiful daughter Emily. I have been praying for you entire family through this difficult journey.

    I wish I had wonderful words to say to comfort your hurting hearts. When my daughter Lucy died (she was 3 days old) my mother told me that my grandfather was most likely waiting for her with an ice cream cone. And I know that Christopher and Alexander were waiting to welcome Emily into heavan, but that you desparately wish that they were all here on earth with you.

    I will continue to pray for you.

    Love,
    Jane

  41. Melissa

    I am sending my thoughts and prayers your way today. I am so sad for your loss. She will always be your angel. You will always have 3 little angels watching over you all.

  42. You don’t know me. I heard about Emily from Asher’s site. Yesterday I sat and read your entire journal from beginning to end. Right before I finished I checked for a new update and read that she joined Christopher and Alexander in Heaven. I am sad beyond what words can express. She was SUCH a strong, determined, feisty little girl. I absolutely fell in love with her feistiness. Especially when she would hit her nurses!! I had the most peaceful dream last night in which Emily was crawling away!!! Needless to say, while reading her journal yesterday I was very impressed by her working at crawling and trying to roll over. She had so much spunk in her! Her ‘blow’outs’ made me laugh each time I read about one. Especially when she got the one nurse 2 times in a row! Amazing such a sweet little girl could make such STINKY POO!! Your beautiful Emily made such an impression on my heart (obviously if I dreamed about her!). I must say I bet she’s up there letting all of Heaven know how things are going to run now that Emily is in the house!
    I am so so so sorry for your losses. I can’t imagine losing one of my children let alone 3. Each of the triplets was so special and made their mark on the world in their individual ways. You were wonderful parents and they were so blessed to call you mommy and daddy. My heart is with you and I will continue to smile when I think of Emily and I will keep you in my prayers. Thank you for blessing us by allowing us to get to know you and your AMAZING children. God Bless You!

    http://www.caringbridge.org/or/kaitlynp

  43. Anonymous

    I am so sorry. The picture of her was so lovely. I can tell from reading this how very much Emily was loved. May God give you the strength you need. Connie – Michigan

  44. so sorry to hear about the loss of your beautiful daughter, my heart goes out to you and your family. we all pray for you to be strong and make it thru your terrible times
    love the huether family

  45. I am so sorry for your loss 🙁 What a precious little angel, I am sure her brothers welcomed her with open arms and they are all watching over you.

    Catherine

  46. Emily

    My heart goes out to you family during this time. I will be praying for your family during the days, weeks and months to come.

  47. Anonymous

    We are so very sorry to hear of your precious little girl’s passing. Please know that our thoughts and prayers are with you all during this time and always…

    Kristin and Chad Krumwiede
    North Dakota

  48. I am sorry for you loss of baby Emily. You are in my thoughts and prayers. May God be with you during this difficult time.

  50. Anonymous

    I am also so sorry for your loss! I have been following your site since Sonya and Jong had been posting about their babies. God gave you such a wonderful little girl and it had been really amazing to follow your story.I was so surprised by the turn of events! During this time I pray that Jesus comforts you greatly and ministers His great love to you!
    April -Cold Spring, MN

  51. Anonymous

    I learned of Emily from Isaac(@Rachel Grace’s page).I just wanted to tell you that your Little Miss Emily was without a doubt one of God’s blessings on this earth.Daily,thru your thoughts and words she touched the hearts of many.No baby could have been loved nore.My heart breaks for you on the loss of your prescious girl,and her brothers.

    Nancy O.
    Seattle,WA

  52. Anonymous

    we are so very sorry for your loss. we send you our love and prayers to help get you through this difficult time. we are the parents of 24w5d twin girls born 11/18/06 who went to heaven after just 6 days with us.

  53. I am a newcomer to your blog, but my heart breaks for you right now..I can not imagine the grief you are feeling , I lost a ds when I was 20 wks and the heartbreak was unbearable..Emily now has her wings and is at peace in the arms of the Father along w/her brothers..May God continue to bless you and may he give you the peace that surpasses all understanding..Again I am so sorry for your loss…Hugs and Prayers to you and your family..

  54. I am a newcomer to your blog, but my heart breaks for you right now..I can not imagine the grief you are feeling , I lost a ds when I was 20 wks and the heartbreak was unbearable..Emily now has her wings and is at peace in the arms of the Father along w/her brothers..May God continue to bless you and may he give you the peace that surpasses all understanding..Again I am so sorry for your loss…Hugs and Prayers to you and your family..

  55. I’m so sorry for your loss. No one should ever have to go through the pain of losing one baby. I don’t know how you can handle losing 3.

    My son passed away at 6 1/2 months due from NEC. He was also a micro-preemie.

    Your family is in my prayers.

  56. Anonymous

    I’m so very sorry for your loss. My thoughts and prays will be with your whole family during this very difficult. Emily now has her wings and feels no pain. God rest little Emily.

    Jennifer

  57. I came across your page through Asher and Jacob’s. We have never met before, but my heart is truly breaking for you. I am so sorry to hear about your little girl’s passing. After reading her story and seeing her pictures, it is obvious she is an incredibly strong, bright, and BEAUTIFUL child. Earth’s loss is Heaven’s gain. Emily, fly high with the other angels, sweetheart. You are all in my prayers.

  59. Anonymous

    May you find the peace that you so desperately need. Emily is safe now and will never suffer again. Although every situation is painfully different I do know some of your pain. Not only as a greiving mother but as a former NICU parent. Love each other like never before, only the two of you will ever know what it was like to love that sweet little girl and that will get you through this.
    With Love & Sympathy-
    Kristina

  60. Anonymous

    Dear Lord, I know you Emily is in Heaven with You, where she is free from any pain or suffering. While she will be missed here on earth there is comfort in knowing she is with You and your eternal grace. Please bring comfort to her parents and family during their days of sorrow. We don’t pretend to know Your ways all the time, but trust in the fact you are Good.

    Again, please make her parents aware of how much dignity and inspiration they have brought to so many, and the unspoken gratitude and privilege we fill in having been part of Emily’s journey. Our hearts and prayers are with them.

  61. Oh I am crying so much for you and your family. I am the mommy of a 26 weeker who survived and sadly her twin sister did not. My heart hurts so much for you and I thank you for sharing your story on your blog. God is holding your babies in his arms while they watch over you now. You are generous loving people and I’m sure you know your lives will never be the same again. Colors are richer, family is more important and live is so very, very precious.

    You are in our prayers for comfort and solace. Someday, Joy will return but always it will carry the faces of your babies.

    Jennifer, mom of Beth 26 weeker

  62. Anonymous

    I am so very sorry for your loss. Emily was beautiful and very brave. Sending prayers from Chicago.

  63. My heart goes out to you both on this sad and terrible day of loss. I am a friend of Sonia’s and she shared your link with us on the preemie forum. We are all at a loss for words to convey our prayers for you. Know you have friends here at preemiegroup.com should you need a helping hand or shoulder to cry on. May Emily play fully healed among the clouds with all our angel babies. Bless you all

    Renee

  67. I came across your blog a few months ago and I was so touched by Emily’s story I kept checking back to follow her progress. I am so so sorry for the loss of your sweet girl. Her story has touched many. Even in this difficult time I pray you are comforted to know that she is playing with her brothers under the loving care of Jesus. May God Bless you always.

  69. My heart aches with sorrow for your family. I gave birth to my 23 week and 5 day old twins on 9/29/06, and we underwent many of the same battles your angelic triplets endured. Although we are blessed to still have our twins alive with us today, we were told to give up on our son. You never gave up and you did what was right for your children. I am so incredibly sorry for your loss and my heart and prayers are with your family during this impossible time. I am so sorry.
    Stephanie-Massachusetts

  70. Anonymous

    I’m so sorry for the loss of your precious little ones. Know that your family is in our prayers.

    …Minnesota

  71. Anonymous

    I am so sorry for you loss. My son Paul was born at 24 weeks, suffered two and a half long months before dying. Although I miss him dearly, I would rather suffer in missing him than have him suffer any longer here. He and your beautiful Emily are in a much better place where they will never suffer again and they are a reminder for us to be better people so that we will be able to see them again one day in heaven.

  72. Anonymous

    I just found your blog the other day. I just want to say that your daughter was a beautiful angel. I am a momof a son who was a preemie born with hirschsprungs. And he may not make it to his adult years. In reading your story it makes me wanna fight for him more.

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