A sad day

Jennifer called me this morning and sadly, Emily isn’t doing well.
Jen asked me to post a note to tell everyone they think our sweet little girl may not be with us too much longer.
Emily is stating in the 70s. The Dr’s say her PDA was opening again and she has something called Cor pulmonle, which from what I understand is a progressive cardio pulmonary disease. The prognosis is not good.
Please pray for Jennifer and Tony for strength in this the most unbearable time, and for our little Emily who is loved so much by all whom she has touched, our family, and friends around the world.

Grandma Diane

16 Comments

  1. Anonymous

    I am saddened beyond words to hear of Emily’s condition, and my thoughts and prayers will be with Tony and Jennifer and your entire family. May God give you the strength to face whatever these next days bring, and may you realize how many people Emily is touching with her courage.

  2. I will be praying for little Emily. I have followed her for quite a while after being directed here from Isaac’s blog. I don’t know what else to say, except that your devotion to your daughter is awe-inspiring and I will say a prayer for all of you.

    Barbara in Iowa

  3. Jennifer and Tony,

    My heart is broken for you. I am still praying and holding out hope for some kind of miracle. I pray that you are spending precious time with Emily. I am so so sorry.

    Dear Jesus,

    I pray on my knees lifting up little Emily, and her brave parents Jennifer and Tony. Please send your angels to watch over them. Please Lord, if its in your will, please give them a miracle. They have gone through so much. Lord, please provide them with strength and comfort them.

    In Jesus Name,

    Sonia

  4. Rowena

    Dear Tony and Jennifer,

    I have no words, only tears of sadness but I will continue to pray for a miracle for your precious little Emily. May God keep you in his loving arms. Rowena

  6. Many, many, many prayers going out to you all. Prayers of hope, of comfort, of strength. I wish there was more that I could do than to keep you all my thoughts.

  8. I have been praying for Emily and her family since I day I found their blog. Emily is a beautiful little girl whose strength on Earth has truly shown the work of God. Many prayers going out for continued strength and healing for Emily and her parents.

  9. Sweet Emily, You don’t know me, but you are in our hearts, our thoughts, and our prayers. Thank you for sharing your journey with us! I am thinking of you!

    Erin O.
    Oklahoma City

  10. So sorry to hear the latest news. Will continue to pray for the best though and that Emily will get over this bump in her long road.

  12. Shannon

    Dear Jennifer and Tony,

    My thoughts are with you both right now and baby Emily. I have just sat and read your entire blog from start to finish. What a roller coaster you guys have been on.

    My son was born also at 24weeks and spent 227days in the NICU. I understand the sat problem. Ashton was “the swinger” of the NICU. He is now 19months old, 15 corrected and just came off of oxygen two months ago. Until this day he still has moments where he is satting in the low 80s. Sometimes lower.

    I can’t even begin to imagine what it was like to lose two babies and now feel like you may lose another. Emily has fought for so long that you just have to believe that she will continue to fight. She is absolutely adorable, and I am praying for her.

    I am at a loss for words. I am thinking of you both through this difficult time.

    My thoughts and prayers are with you…

    Shannon
    http://www.ashtonjeffreykaden.blogspot.com

  15. I am so sorry to read that Emily isn’t doing well. I am praying that this is another situation where she will beat the odds, suprise everyone, and get better really soon. I can tell from reading this site that you all love her so much. You write so eloquently. May the Lord bless you tonight and suprise you with His miracles.

  16. I came accross your site from a friend who reads daily. I wanted to let you know I will be praying for Emily, and I hope she will get better very soon. She is a beautiful little baby.

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