Hello,
Well Emily got transferred to the Si-Pap machine that they were waiting to get in. She hasn’t done that well on it though. She figured out rather quickly how to turn the machine off by holding her breath and is often doing that. Therefore defeating the purpose of the machine. Her stats on the machine are not that great also so they are often switching her back and forth between the C-pap and the SiPap.
We think that Emily has a Kidney stone. She is prone to them because of the diarill that she is on to make it so she can live (fluid build up in her lungs is common with her condition). She was screaming uncontrollably for most of the afternoon evening yesterday. They were trying to keep her sedated last night but from what I hear her stats started drifting down and would hang there for long periods of time. While short times of this are not bad (they are not good either) hanging there is really bad!
They are running a series of tests on her today (unfortunately no ultrasounds because of the holiday, this would tell if she has kidney stones) and hopefully we will have some answers soon. We are going to the hospital early today to be with her.
This is about all the news we have for now. Sorry for no pictures but who wants to look at a baby in pain?
Jennifer
Poor baby! Our hearts go out to you and Emily. We hope that the pain subsides, or that they can at least figure out definitively that she has kidney stones so that they can treat them…I can’t believe they can’t do an ultrasound until after the New Year.
Anyway, we just hope that Emily feels better soon. She is such a lovely and wonderful little girl and it’s so awful to see her in so much pain.
Abby, Sharon and Hallie
I am so sorry to hear your precious girl is in pain 🙁 That cannot be easy to bear, you are staying so strong for her, and she is too –
Big hugs,
Catherine
I am sorry that poor Emily has to go through this. It just isn’t fair! I will be saying lots of prayers for her and you whole family! I am sending hugs your way.
Susan
God Bless all of you today. I pray that Miss Emily receive a touch from God today in the name of His Dear Son, Jesus.
Poor little Emily. She doesn’t deserve this. I so hope that she is doing better by the time you read this. I can’t imagine that they can’t do an ultrasound immediately. That’s just WRONG! I just hope that somehow she has been made more comfortable. Prayers and hugs to all of you, Rowena
Jennifer
I am on another board with Sonia, went through IF treatments and am the mom of two preemies. I have followed your story from the beginning when Sonia started asking for prayers for your little ones. My heart goes out to you. I pray for Emily everyday and check your blog often. I look forward to the day the post is about Emily coming home but until then know how many people are keeping you and your family in their thoughts and prayers!
Marie