I thought I would post a generic picture of what Emily’s lungs are like. Neither photo is of Emily. The one below is what Emily’s lungs looked like the last time we saw an x-ray (a month or so ago). We have been told they have seen some improvement but not much since then.
This is what a normal lung would look like if she had been born as most babies are.
Just thought it would help people understand what we are up against.
Jennifer
I am a friend of Sonia’s. I just wanted to let you know that I’m praying for precious Emily!!!! Sending prayers and hugs your way, also!
QuiltedHeart
I’m a friend of Sonia’s. Definitely praying for precious Emily!!!! I’m sending hugs & prayers your way, too!!!
Hey there. I haven’t written in a little bit, but I have been checking the blog every day. The most recently posted pictures are awesome, by the way. I miss seeing that beautiful face. I was sorry to hear the news from the family meeting wasn’t exactly what you probably were looking for. I wish I could have been there with you. I am still praying for a Christmas homecoming. Stay strong. I’m sure I have said this before, and you know as well as I do, Emily has a way of following her own path and making up her own rules. And I firmly believe it is all in God’s hands. Even so, she’s going to get a little pep talk as soon as I see her! I miss you all!
Hi guys,
I am sorry to hear the news about Emily’s lungs. The good news is that she is not on a vent and is using a cannula and hood. I remember looking at Sagan’s x-rays and they looked so bad, it was the scariest thing in the world. I recently saw an x-ray of his lungs and they were somewhere between the two photos you posted. He probably won’t ever be an Olympic athlete..oh well. What I am trying to say is that Emily’s lungs will never be perfect (I know you know that), but then again, they don’t need to be for her to live a regular life. As she gets bigger, her lungs will grow and the damage will take up less space. Does that make sense? You want her growing longer, which allows her lungs to get bigger…so “eat up” Miss Emily!!
My heart is hurting right now thinking of you guys facing this Christmas without having your precious girl at home with you. I will be saying prayers that this will change. Remember a month or two ago they weren’t giving her good odds for being here and look where she is now. She is like Super Girl!
I was in the NICU one day and was told Sagan wouldn’t be coming home for at least a month (this was a Saturday). I came in the next day and the staff were bustling around and said “he is going home this Tuesday!” So, like everything else in the NICU, things are always changing.
I, for one, cannot wait to see her in the beautiful outfit everyone has chosen for her trip home. I am praying that the day is soon. Please don’t get discouraged!
Hugs,
Susan