“Free Emily!!” Hello, Sorry we haven’t been able to post till now. The Internet was down for 2 days at the time that I normally post. Then when it finally got back up I had a backlog of things to do and so posting got pushed back. Emily has been doing okay on the c-pap. … [Read more…]
Emily was put to the C-pap on Friday. The doctor says that this is one final effort to having her not be trached. I believe that Emily is close to not needing to be trached. She does many things that normally put a baby down that route, including breathing on her own and being of … [Read more…]
We got some bad news about Emily yesterday. The flow rate on her cannula was increased to 6 liters / minute, and they haven’t been able to wean her off of 100 % oxygen. The doctors have said that if she gets to the point where she would require a CPAP, they are going to … [Read more…]
Hello! Sorry it has been a while since we posted. Emily is doing well. She had a really good day on Saturday and was awake for most of the time that we were there. On Sunday she had a bad day though and was desating a lot. She looked pale to me and they ran … [Read more…]
Emily has had some good days recently. She had her milk scan on Wednesday which I was there for. I was actually able to be there for the whole test. The test was simple enough, lay Emily on an imaging table and feed her a bottle with radioactive (slightly) material in it with her milk. … [Read more…]