Emily’s new device

Hello, Well Emily did rather well yesterday. She couldn’t get her oxygen lowered over night and didn’t take any bottles but by the time I saw her she really wanted to be held. So I did that. She breast fed well from me taking about 15 to 46(!) cc’s or 1/2 oz. to 1.5 oz … [Read more…]

Thirteen Days Old, Corrected

Emily is still packing on the weight- she now weighs 2600 grams, or 5 pounds, 11 ounces. She had a pretty good day yesterday and did well through the night. She was very congested yesterday and had to be suctioned, but she had a good session with occupational therapy and slept a lot. She has … [Read more…]

Emily’s Lungs

I thought I would post a generic picture of what Emily’s lungs are like. Neither photo is of Emily. The one below is what Emily’s lungs looked like the last time we saw an x-ray (a month or so ago). We have been told they have seen some improvement but not much since then. This … [Read more…]

Our family meeting

The picture below was taken before she got her blood. You can see how pale she is. Hello, Well Emily is doing slightly better yesterday. She is stating well most of the time. However she is on 100% oxygen through the canula and through the oxihood. They have increased her inhaled steroids and if they … [Read more…]

121 days old

Hello, Well Emily had a rough day yesterday. She was desating a lot and had a hard time even getting into the 80% range. She also looked pale to me but I thought it was because she was desating so much. They tried raising her canula oxygen to 100% then they raised her oxihood oxygen … [Read more…]